Yesterday I had an amazing conversation with Sondra, one of the masterminds behind Bullshit Breast Cancer. Sondra and Mia started Bullshit Breast Cancer to offer a safe place for breast cancer survivors, women and men alike, to share their stories and support one another, offering tips, suggestions and resources.

We talked about so many things, one of them being the emotional harm that comes with being censored by social media, by being locked out of your account, when images of chests post surgery are shared. Shut down, locked out, without any inquiry to clarify your reason for the post, no opportunity to explain, educate, or stick up for yourself.

An invisible, unseen hand that not only represses an expression of vulnerability, but likely leaves you with the indirect message that what you did was shameful.

Speaking for myself, when I see someone’s post about their mastectomy, their reconstruction or their decision to go flat (ie no reconstruction), I see someone who is willing to be brave, who is trying to make sense of what has happened to them, who is trying to express that breast cancer is not an awesome opportunity to get a “boob job” for free. I see someone who is seeking to connect with others, to share personally what they have been through, to show a different angle on beauty and strength. I see someone just like me, and it gives me comfort, hope, inspiration, and a sense that I am altered, yet I am worthy of love and affection.

I understand that if you are not a part of the breast cancer community, you might not understand the power of these images. However, I think we need to look very carefully at taking responsibility for our discomfort, rather than having a knee jerk reaction to censor what we don’t understand.

Censoring does not just apply to social media or large organizations- it happens in our most intimate relationships. The ways in which we hide ourselves because we see someone’s discomfort, fear or rejection of who we are or what we have been through. Or we worry that we will be rejected, so we preemptively do it to ourselves, for protection and preservation of the relationship.

Many cancer survivors have felt this, of someone turning away, disconnecting, or censoring who they are (or what they are willing listen to). Often this is driven by that person’s own fears, own uncertainty, own incapacitation that they don’t know what to do. However, if a relationship is truly going to stand the test of time- the test of adversity- the test of cancer, censorship can’t go on. It will eat away and destroy the fabric of the relationship.

Rather than getting caught up in our own personal whirlpool of uncertainty, of complication… what if you did one brave act- the act of starting the conversation. You don’t need to know all of the answers, you don’t need to solve the problem. What helps is the willingness to notice that something has changed and be willing to listen.

Overcoming censorship in our intimate relationships, the sort that keeps us hiding who we are and how we feel, is vital if we want to have deep intimacy with our loved ones. Just as spreading education, awareness and advocacy will hopefully impact the larger scale censorship that needlessly hurts a community that is trying to heal.

-Stephanie McLeod-Estevez, LCPC, is an art therapist and breast cancer survivor, and a former oncology counselor at the Dempsey Center. She began Creative Transformations to help others who are healing from a life threatening illness or injury. Through Creative Transformations, she works with people in person and online to offer cancer coaching, an Art as Therapy program, workshops, and this weekly blog. Check out the individual packages, the self assessment tool, and virtual workshops.  Sign up today so you never miss a blog and find us on Facebook, Twitter and Instagram.